Locks of Love: A Personal Gift

Story by K. Andarin Arvola

Most of us remember the Old Testament story of Samson and Delilah. Samson fell in love with Delilah. She was bribed by the Philistines, and discovered that his strength came from his hair, which had never been cut. While he was asleep it was cut, Samson was drained of his strength, and the Philistines were able to capture him.

Hair is important to most of us. Remember the musical Hair? How about the movie Shampoo? Notice the comb-overs of men going bald; the billions of dollars spent annually on hair care by both men and women.

It’s especially important to children with hair loss and that’s where Florida-based Locks of Love comes to the “rescue.”

The opposite of Samson and Delilah happens with Locks of Love; by cutting and donating their hair for hairpieces, local north coast residents empower young people across the nation and often themselves.

Madonna Coffman, a retired nurse, knows firsthand about hair loss. In her twenties, she developed alopecia and recovered. When her then four-year-old daughter developed the condition, she knew she needed to do something.

“After watching my child go through this, and knowing there was no medical cure made me want to help less-fortunate children,” she says.

After researching companies that make custom hairpieces, Coffman incorporated Locks of Love in 1997.

Who Needs Locks
Locks of Love helps children who are financially disadvantaged, age eighteen and under, suffering from long-term medical hair loss from any diagnosis. Most suffer from an autoimmune disorder called alopecia areata, which causes the hair follicles to shut down. In addition to the loss of scalp hair, many also lose their eyelashes, eyebrows and all body hair. This hair loss is permanent in most cases, and there is no known cause or cure.

Others have been victims of severe burns, endured radiation treatment to the brain stem as a treatment for cancer, or suffer from any number of skin disorders that cause permanent hair loss.

To Get Locks
Parents fill out an application that includes a doctor’s diagnosis regarding their child. Hairpieces either are free or provided on a sliding scale based on a family’s financial need. The process starts at home by making a plaster mold of the child’s head using an instructional video. There’s a palette of hair samples from which a color is chosen. A manufacturer takes the mold and produces a vacuum-fitted cap that acts like a suction cup so the hairpiece stays in place without adhesives. Once the child approves the fit, a one-of-a-kind hairpiece from donated hair is hand-assembled.

Benefits to Children
According to Locks of Love, children who receive these hairpieces have lost more than their hair; they suffer from a loss of self. Many children have been teased by classmates and/or embarrassed by the attention they receive because of their hair loss. They often will withdraw from normal childhood activities such as swimming, or even playing with their friends.

Wearing a hairpiece is certainly not a cure for these children, but it can help restore some of the normalcy to their everyday lives that most of us take for granted. It’s the goal of Locks of Love to help provide a foundation on which they can begin to rebuild their self-esteem.

Why Locks are Needed
Several problems face children who suffer from long-term medical hair loss. Most wigs sold are made to fit adult heads, and are much too big for children. They often require the use of tape or glue to keep them from falling off, and these adhesives can burn or irritate the scalp. Often, the styles of adult wigs are not age-appropriate and synthetic wigs can mat and frizz with excessive styling.

The hair prosthetics Locks of Love provides are custom-made from donated ponytails for each child’s head. They retail between $3,500 to $6,000. The hairpiece forms a vacuum seal, like a suction cup, and does not require the use of tape or glue. Only the wearer of the hairpiece may remove it, by breaking the vacuum seal at the temples. Children can dismiss insecurities about classmates pulling off their hairpiece, or losing it at recess. They can swim, shower and do gymnastics—in short, they can be kids again. Each hairpiece is made from real human hair, and arrives long, so the recipient may style it to fit their face.

A Personal Gift
Here on our beautiful north coast we have people who are just as beautiful. They give unsparingly of their time and energy to keep our communities thriving. It seems that most of us volunteer in some way to make the lives of all of us just that much better. There’s a group that goes even further and literally give of themselves—they cut their hair and donate it.

Like many of us, Jill Lydick wears a lot of hats. She’s the assistant manager at the Fort Bragg Community Federal Credit Union and the coordinator for the last two events to gather hair for children with hair loss through Locks of Love.

“I heard about it, looked it up, got approved for the event and went from there,” she tells me. “I contacted Head Hunters, a salon in Fort Bragg, to see if they’d be interested, and Rosanna Raymann, the owner, offered immediately. They were so excited and open to it. Then I found out that Linda Lester [also at Head Hunters] had lost a daughter to leukemia and we decided to do the event in Tamara Fenton’s honor. I thought, ‘this was meant to be.’”

Lydick speaks with reverence about the people who donate their hair. “There’s so much enthusiasm. It’s so personal for each of them. The corners of your mouth go up as the hair comes off, for everyone.”

She tells me about a woman in her forties who’d never cut her hair because her father hadn’t wanted her to; she “removed it with love” after his death. Another woman brought in her mother-in-law’s carefully preserved hair that was twenty years old. A woman and her three daughters all donated their hair. “Some people have gotten drastic. ‘Spike it,’ they say.”

“It’s a big transformation. Some of the people with very long hair don’t know what to do with their new hair cut, but they work with a stylist and that helps,” explains Lydick.

Locks of Love inspired Fort Bragg resident Lorena Shea to donate her hair. What I always remember about her are the two long, long braids that she skillfully wrapped around her head. When she had skull surgery, the hospital cut off one of those long braids and shaved her head. She saved the braid. She knew she’d cut the other half, and then a cousin told her about Locks of Love. Shea heard they were cutting hair locally so she decided to donate the other braid as well. Shea tells me people ask if she’s going to grow it long again but she says, “I don’t think I have another thirty-five years to grow it.”

Then there’s Sandy Rambolt, the first person to get his (yes, his) hair cut in 2007. “I was familiar with Locks of Love and talked to Jill about donating my hair. I was tired of long hair,” he explains. “I was going to get it cut anyway. It’s
better to donate it than have it fall on the floor and be swept away.” He’s growing it again for another donation. “I’ll keep doing this until it won’t grow any more.”

The credit union sponsors the event and serves refreshments. “When we get done, we line up all the hair on a long table at the credit union; it’s just beautiful, all the colors and textures, especially the hair from young people, it’s
fantastic,” says Lydick.

In 2006 she had a broken leg and was on crutches but “no way was I going to miss this.” Plus, she had her hair cut so she could donate it. That year they collected twenty ponytails, forty-four in 2007 and thus far five in 2008. People can donate any time of the year and bring it into the credit union, she informs me.

Other salons that provided people to cut hair were Taj Mahair, Studio 3, and Head to Toe.

Haircuts with Love
“Jill Lydick said they were cutting hair for Locks of Love and we got to talking,” says Linda Lester at Head Hunters Salon in Fort Bragg. “When she found out that my daughter, Tamara Fenton, died of leukemia she asked if they could dedicate this in her honor. Of course, I said yes.”

In 1964, Tamara was the New Year’s Baby in Miami, Oklahoma. Tamara was eleven-years-old when she died. “It was real hard,” says Lester. “Before she died, Tamara said she wanted to be buried in California in a long pink dress, and she was.”

It’s still difficult for Lester; her eyes shine with tears as we talk. “When I see girls that look like Tamara, it’s hard. I still have the scars, but to me everything has a purpose. It’s important to me to help. It makes me feel good to help. I have an angel in heaven looking down saying, ‘Good for you, Mom.’”

Although the event has only been going on formally for two years, people can come in throughout the year to donate. Lester has two appointments with young girls in early June who are donating their hair. “They can call me any time at Head Hunters,” she says.

“It’s the gratitude that comes of being able to share, of giving something that’s important to them.” says Lester. “They’re giving from their heart and of themselves. They’re not here to get something. What more can you give than to give of yourself. That’s priceless.”

“I wish you could see through my eyes,” she continues. “When these kids are bald-headed, people look at them, then the change when they get the wig—they glow. They fit in. In her last picture Tamara had on her wig and she had the biggest smile.”

Most of the people who cut hair call themselves something, and Tanya Sousa, owner the Style Salon in Fort Bragg, says she’s a hair magician.

“I’ve been doing this for at least ten years,” she tells me. “Informally through Locks of Love. But Jill Lydick said ‘let’s make it a party around the holidays so people can give.’ The haircut and styling is free and it’s a good way to meet new people,” she adds.

Sousa says that in the 1970s her salon used to send in hairpieces and wigs to an organization so they could be donated for cancer patients. “It’s the way Fort Bragg is, people help out.”

Nancy Acosta, who works at Style Salon, says “It’s great to see the kids, my two granddaughters, Janee (nine) and Jesee (six) Estes have just cut their hair this past Sunday. All their friends know about it and some grow their hair so they can donate it.”

Acosta says, “We’ve both been hairdressers since 1963 and we’ve done many, many things to help out.”

Not everyone goes to a salon for a haircut, although it’s recommended. Jill Summers, who works for the Cancer Resource Center of Mendocino County, tells me that she cut her hair in August of 2006 because “I wanted a change, and I always assumed that I’d send it to Locks of Love. I’d heard of them in high school. It just made sense—what else was I going to do with it? A few weeks later I got a card/certificate in the mail from them saying thank you for my donation.”

Since she works at the cancer resource center, she’s seen how a wig made of real hair can change how a person looks at their treatment. “When our adult clients come for a wig, which we give out for free, I know it will make them feel that much better about themselves.”

“My hair has since grown out and is now again over fifteen inches long,” Summers adds. When I get around to cutting my hair this time, I’ll probably give it to them again. It’s even more painless than giving blood, and I know I’ll get to make a huge difference in someone’s life!”

To Donate Locks
Locks of Love, along with Nexxus Salon Hair Care, has created an easy-to-follow, brief video tutorial educating interested donors and their hair stylists on the proper steps for donating. The video details hair requirements, such as length and condition, mailing rules, including proper storage of cut hair.

Although anyone (men and women) can cut their hair as long as the guidelines listed below are followed, Locks of Love encourages all donors to go to a salon they are already familiar with to ensure their comfort when donating. Not all hair is created equal.

About Hair Donations:
• Hair that is colored or permed is acceptable.
• Hair cut years ago is usable if it has been stored in a ponytail or braid.
• Hair that has been bleached (usually this refers to highlighted hair) is not usable. If unsure, ask your stylist.
• Hair that is swept off of the floor is not usable.
• Hair that is shaved off and not in a ponytail or braid is not usable.
• They cannot accept dreadlocks. Their manufacturer is not able to use them. They also cannot accept wigs, falls, hair extensions or synthetic hair.
• Layered hair is acceptable if the longest layer is ten inches.
• Layered hair may be divided into multiple ponytails.
• Curly hair may be pulled straight to measure the minimum ten inches.
• Ten inches measured tip to tip is the minimum length needed for a hairpiece.
• Shorter hair will be separated from the ponytails and sold to offset the manufacturing costs. The shorter hair cannot be used in the hairpieces but it still greatly helps to reduce costs.
• Gray hair will be accepted and sold to offset the manufacturing cost.

Local Cancer Resource Center
We’ve been concentrating on hair loss in children and their illnesses, only one of which is cancer. It’s good to know there’s a terrific organization here in Mendocino County that can help, regardless of age—the Cancer Resource Center of Mendocino County, with offices in Mendocino and Ukiah. They have an informative website at www.crcmendocino.org which notes: Each year, in Mendocino County, 450-500 people are diagnosed with cancer. Most people have a family member, friend, or acquaintance who has or has had cancer.
Cancer Resource Center of Mendocino County, a grassroots organization, has been working since 1995 to improve the quality of life for those in Mendocino County facing cancer. They provide a wide range of information, support, and advocacy assistance to a broad network of clients, their families and friends. All of their services are offered free of charge and all of their efforts are spent in Mendocino County.
Held each year in conjunction with the National Cancer Survivors Day Foundation, the ninth annual Big River Walk is being held on Saturday, May 3l. Participate in this inspiring and beneficial walk which will start at 10:00 a.m. just east of Highway 1, south of the historic village of Mendocino. The course follows the scenic, unpaved Big River Road along Big River. After the
walk,join them for a memorial ceremony on the edge of the river to
remember those who have passed away. For more information: www.crcmendocino.org/brrun/default.html.

What You Can Do
Locally, members of our community are doing what they can to help ease the life of a child with hair loss life by donating their hair for Locks of Love through local salons. The event is held between Thanksgiving and Christmas.
Join them.

Be creative this summer—grow your hair!
Donate to Locks of Love

Sources
Locks of Love
2925 10th Avenue North, Suite 102
Lake Worth, FL 33461-3099
locksoflove.org or call 888.896.1588
volunteer@locksoflove.org

Cancer Resource Center of Mendocino County
P.O. Box 50 • 45040 Calpella
Mendocino, CA 95460
707.937.3833 • 1.800.449.6483
590 South Dora Street
Ukiah CA 95482
707.467.3828
www.crcmendocino.org

Head Hunters
262 North Main Street
Fort Bragg, CA 95437
707.961.0707
(Linda Lester)

Fort Bragg Community Federal Credit Union
120 North Franklin Street
Fort Bragg, CA 95437
707.964.4966
(Jill Lydick)

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